Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Photo of Tom ClonanTom Clonan (Independent)
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On the basis of the outcomes and international comparators, we seem to be behind our peers in other parts of the EU. I have serious concerns that the NCPE does not have an ethicist and does not have enough interface with the human sciences and expertise in this area. That is something the centre ought to consider. Its decision-making process, if it entails a simple cost–benefit analysis, is inherently unethical.