Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Professor Michael Barry:

We do not make decisions. The reimbursement recommendation is by the HSE drugs group, which has many stakeholders, including laypeople. It is not our job to make decisions. We provide information in relation to what we are asked, and we are asked a very simple question: is this value for money or is it not? That is what we provide. We have never made a decision. I have never made a decision on a drug in my life.

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