Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Dr. Lesley Tilson:

We have a patient organisation submission process and there is a template. The organisations submit their representations via the NCPE and they are presented to the drugs group. There is a public representative on the drugs group, and they consider the wider range of criteria in addition to the NCPE evidence. Some of this refers to beyond the NCPE.

Comments

No comments

Log in or join to post a public comment.