Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Photo of Tom ClonanTom Clonan (Independent)
Link to this: Individually | In context

I thank the witnesses. I have a young man at home who has a rare disease, and unfortunately for him I do not think there is any treatment available for him at the moment. We live the life of the family witnessing a person’s quality of life deteriorating, with life-limiting and life-altering implications for him.

For how long has Professor Barry been in his post?