Oireachtas Joint and Select Committees
Wednesday, 15 October 2025
Joint Oireachtas Committee on Health
Treatment of Rare Diseases: Discussion
2:00 am
Tom Clonan (Independent)
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I thank the witnesses. I have a young man at home who has a rare disease, and unfortunately for him I do not think there is any treatment available for him at the moment. We live the life of the family witnessing a person’s quality of life deteriorating, with life-limiting and life-altering implications for him.
For how long has Professor Barry been in his post?