Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Professor Michael Barry:

The discussions are with a number of groups, through the office of the chief clinical officer. We are having discussions with the Irish Pharmaceutical Healthcare Association and the industry. It is envisaged that once some sort of format is agreed, it will then be taken into the healthcare setting. I am very encouraged by the discussions to date.

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