Oireachtas Joint and Select Committees
Tuesday, 30 September 2025
Joint Oireachtas Committee on the Implementation of the Good Friday Agreement
Engagement with Institute of Public Health
2:00 am
Seán Crowe (Dublin South West, Sinn Fein)
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On access to medicines and treatments that people really need which are available in one jurisdiction but can throw up all sorts of bureaucratic barriers and delays, I gave the example last week with the shared island unit of a number of young people who have Duchenne muscular dystrophy. There is a drug named givinostat, which is available in the North but not in the South. Have the witnesses come across barriers like that? Would they agree that a more streamlined approach and co-operation, particularly for children in this position, needs to be put in place as a matter of urgency? I do not think either Minister or jurisdiction would be opposed to that but clearly there are barriers within both jurisdictions and systems. Do the witnesses have any views on this matter?