Oireachtas Joint and Select Committees

Tuesday, 30 September 2025

Joint Oireachtas Committee on the Implementation of the Good Friday Agreement

Engagement with Institute of Public Health

2:00 am

Photo of Seán CroweSeán Crowe (Dublin South West, Sinn Fein)

On access to medicines and treatments that people really need which are available in one jurisdiction but can throw up all sorts of bureaucratic barriers and delays, I gave the example last week with the shared island unit of a number of young people who have Duchenne muscular dystrophy. There is a drug named givinostat, which is available in the North but not in the South. Have the witnesses come across barriers like that? Would they agree that a more streamlined approach and co-operation, particularly for children in this position, needs to be put in place as a matter of urgency? I do not think either Minister or jurisdiction would be opposed to that but clearly there are barriers within both jurisdictions and systems. Do the witnesses have any views on this matter?

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