Gerald Nash (Louth, Labour)
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1109. To ask the Minister for Health if she is aware of the difficulties people suffering from a rare genetic condition are having in accessing a drug (details supplied); the plans to make this drug more easily available; and if she will make a statement on the matter. [63665/25]

Jennifer Carroll MacNeill (Dún Laoghaire, Fine Gael)
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Under the Health (Pricing and Supply of Medical Goods) Act 2013, the HSE has statutory responsibility for decisions on the pricing and reimbursement of medicines and medical devices; therefore, the matter has been referred to the HSE for attention and direct reply to the Deputy.