Written answers

Thursday, 22 May 2025

Department of Health

Disease Management

Photo of Brian StanleyBrian Stanley (Laois, Independent)
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358. To ask the Minister for Health to review the decision not to grant access to the HSE approved medication for, those who have spinal muscular atrophy who were over 18 years at the point where it became approved by the HSE; and if she will make a statement on the matter. [26450/25]

Photo of Jennifer Carroll MacNeillJennifer Carroll MacNeill (Dún Laoghaire, Fine Gael)
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Under the Health (Pricing and Supply of Medical Goods) Act 2013, the HSE has statutory responsibility for decisions on the pricing and reimbursement of medicines and medical devices; therefore, the matter has been referred to the HSE for attention and direct reply to the Deputy.

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