Written answers
Wednesday, 19 March 2025
Department of Health
Disease Management
Grace Boland (Dublin Fingal West, Fine Gael)
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1868. To ask the Minister for Health the role of the rare disease and long Covid policy unit; and if she will make a statement on the matter. [12556/25]
Jennifer Carroll MacNeill (Dún Laoghaire, Fine Gael)
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The Rare Diseases and Long COVID Policy Unit has responsibility for the development of a new Rare Disease Strategy for Ireland including supporting the National Rare Disease Steering Group and the Rare Disease Patient forum; oversight of the implementation of the interim Model of Care for Long COVID; and engagement with the HSE’s National Rare Disease Office and relevant stakeholders on the development of rare disease services in Ireland.
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