Written answers

Tuesday, 18 February 2025

Photo of Marie SherlockMarie Sherlock (Dublin Central, Labour)
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746. To ask the Minister for Health for an update on the National Genetics and Genomics Office priority deliverables for 2025; the additional resources required to fully ensure the key performance indicators are achieved within the relevant timeframes; and if she will make a statement on the matter. [5836/25]

Photo of Kieran O'DonnellKieran O'Donnell (Limerick City, Fine Gael)
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The National Genetics and Genomics Office (NGGO) was established to drive the implementation of the National Strategy for Accelerating Genetic and Genomic Medicine in Ireland. My Department has been working closely with the NGGO to manage and implement this hugely valuable programme of change and to overcome the present and historical challenges associated with delivery of genetic and genomic medicine in Ireland.

My Department has provided the resources to deliver the priorities which have been approved as part of the National Service Plan 2025 and include a National Bioinformatics Director, bioinformaticians, communications officer, workforce project manager and two posts to provide overall support for the work of the National Office.

Already this year we have seen the launch of the National Test directory for rare diseases (January 2025) which will be expanded in due course to cover wider health care areas. In addition, resources have been approved to set up the National Genomics Processing Service and to improve access to clinical services.

My Department is fully committed to implementing the National Strategy for Accelerating Genetic and Genomic Medicine in Ireland and taking the required next steps to support the NGGO in delivering on this objective, both during 2025 and beyond.

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