Written answers
Tuesday, 8 October 2024
Department of Health
Medicinal Products
Marc Ó Cathasaigh (Waterford, Green Party)
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575. To ask the Minister for Health his views on publicly funding the drug fenfluramine in the treatment of severe seizures as experienced by infants and children with Dravet syndrome who have and develop a high resistance to other anti-seizure medication, given the impact on the seizures on the children in both in the acute stage and as they develop in later years, and given that the drug is publicly funded in many EU countries; and if he will make a statement on the matter. [39943/24]
Stephen Donnelly (Wicklow, Fianna Fail)
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Under the Health (Pricing and Supply of Medical Goods) Act 2013, the HSE has statutory responsibility for decisions on the pricing and reimbursement of medicines; therefore, the matter has been referred to the HSE for attention and direct reply to the Deputy.
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