Written answers
Thursday, 5 May 2022
Department of Health
Disease Management
Róisín Shortall (Dublin North West, Social Democrats)
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250. To ask the Minister for Health the progress that has been made by the National Clinical Programme for Neurology and the HSE Scheduled Care Transformation Programme throughout 2021 and 2022 to develop an integrated cross discipline pathway for Huntington’s disease, considering the need for an integrated cross discipline service, which will take responsibility for the coordination of care following a Huntington’s disease diagnosis; the supports that will be made available to families of persons who receive a positive predictive test result; his plans to include the experience and voice of families affected by Huntington’s disease in the development of the integrated pathway; and if he will make a statement on the matter. [22537/22]
Anne Rabbitte (Galway East, Fianna Fail)
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As the Deputy's question relates to a service issue, it has been referred to the HSE for direct reply.
Róisín Shortall (Dublin North West, Social Democrats)
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251. To ask the Minister for Health the number of patients seen each month at the Huntington’s disease clinic in Beaumont Hospital; if he will outline the multi-disciplinary services available; the frequently with which patients receive an MDT review; the way in which this Huntington’s disease service compares with the motor neurone disease service it aims to mirror; and if he will make a statement on the matter. [22538/22]
Stephen Donnelly (Wicklow, Fianna Fail)
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As this is a service matter, I have asked the Health Service Executive to respond to the deputy directly, as soon as possible.
Róisín Shortall (Dublin North West, Social Democrats)
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252. To ask the Minister for Health the number of persons living with Huntington’s disease supported by dementia advisers and memory technology resource room staff. [22539/22]
Stephen Donnelly (Wicklow, Fianna Fail)
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As this is a service matter, I have asked the Health Service Executive to respond to the Deputy directly, as soon as possible.
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