Denis Naughten (Roscommon-Galway, Independent)
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399. To ask the Minister for Health the process for patients with rare diseases to obtain accurate and timely diagnoses via European Union cross border genetic testing (details supplied); the number and the cost for the provision of this service in each of the past five years; and if he will make a statement on the matter. [19024/22]

Stephen Donnelly (Wicklow, Fianna Fail)
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As this PQ relates to service matters it has been referred to the Health Service Executive for a direct reply.

Denis Naughten (Roscommon-Galway, Independent)
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400. To ask the Minister for Health the national clinical guidelines which exist for each rare disease to facilitate the optimal diagnostic and therapeutic management of the given rare disease which comply with the European Commission Cross Border Care Directive 2011/24/EU; and if he will make a statement on the matter. [19025/22]

Stephen Donnelly (Wicklow, Fianna Fail)
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As this PQ related to diagnosis and treatment matters it has been referred to the Health Service Executive for a direct reply.

Denis Naughten (Roscommon-Galway, Independent)
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401. To ask the Minister for Health when he will extend the national patient disease registries to rare diseases; and if he will make a statement on the matter. [19026/22]

Stephen Donnelly (Wicklow, Fianna Fail)
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I propose to bring, in April, a Memorandum to Government for approval to prepare the General Scheme of a Health Information Bill. It is envisaged that the Bill will include a provision to enable the operation of disease-specific “virtual” registries, where information on disease diagnoses and treatment from healthcare providers is efficiently collated, combined and quality-checked from administrative records to create a database akin to an active registry for each disease. This will greatly improve the potential to monitor rare-disease prevalence in Ireland.