Written answers

Wednesday, 21 April 2021

Department of Health

Disability Services Provision

Photo of Bernard DurkanBernard Durkan (Kildare North, Fine Gael)
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2071. To ask the Minister for Health when the report on Prader-Willi syndrome will be published; the extent to which matters arising are in hand with a view to meeting the concerns of families affected by this particular condition; and if he will make a statement on the matter. [19741/21]

Photo of Anne RabbitteAnne Rabbitte (Galway East, Fianna Fail)
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The Government is committed to providing services and supports for people with disabilities which will empower them to live independent lives, provide greater independence in accessing the services they choose, and enhance their ability to tailor the supports required to meet their needs and plan their lives.

I met with representatives of the Prader-Willi Syndrome Association of Ireland (PWSAI) on the 4th February this year and I must say that the Prader-Willi syndrome Report is very much welcomed and a reflection of the commitment of PWSAI.

It was proposed to enlist the wider support of other stakeholders in conjunction with the Health Service Executive (HSE) to formulate an implementation plan.

I am informed by the HSE that this process is being undertaken with a view to publishing the report, and establishing a working group to develop a model of integrated clinical care that will take into account the specific healthcare recommendations of this report.

As this is a service matter, I have asked the HSE to respond to the Deputy directly, as soon as possible.

Photo of Bernard DurkanBernard Durkan (Kildare North, Fine Gael)
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2072. To ask the Minister for Health the progress to date on the provision of a respite centre for persons affected by Prader-Willi syndrome; if budgetary provision is adequate to meet this request; and if he will make a statement on the matter. [19742/21]

Photo of Anne RabbitteAnne Rabbitte (Galway East, Fianna Fail)
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The Government is committed to providing services and supports for people with disabilities which will empower them to live independent lives, provide greater independence in accessing the services they choose, and enhance their ability to tailor the supports required to meet their needs and plan their lives.

As this is a service matter, I have asked the Health Service Executive to respond to the Deputy directly, as soon as possible.

Photo of Bernard DurkanBernard Durkan (Kildare North, Fine Gael)
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2073. To ask the Minister for Health when a specifically dedicated area in psychiatry will be apportioned to studies relating to Prader-Willi syndrome; and if he will make a statement on the matter. [19743/21]

Photo of Mary ButlerMary Butler (Waterford, Fianna Fail)
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As this is a service matter, I have asked the Health Service Executive to respond directly to the Deputy as soon as possible.

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