Written answers
Wednesday, 16 October 2019
Department of Health
Departmental Programmes
Anne Rabbitte (Galway East, Fianna Fail)
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176. To ask the Minister for Health the steps he is taking to consult with charities and patient organisations on whole genome sequencing; and if he will make a statement on the matter. [42469/19]
Simon Harris (Wicklow, Fine Gael)
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Stakeholder engagement is a fundamental component in the development of policy. Various structures, including public consultation, have been developed to ensure that the voice of the public and the patient is represented in the policy development process.
Currently, there is no formal consultation structure that applies uniquely to whole genome sequencing. However, the whole issue of genetics, genome sequencing, service provision and research, in the context of future policy developments in relation to precision/personalised medicine is currently under review by the Department.
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