Stephen Donnelly (Wicklow, Fianna Fail)
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206. To ask the Minister for Health if a detailed analysis of the decision not to make Spinraza available to persons here will be provided including but not limited to the final agreed costs to the HSE and the final agreed costs in all other relevant jurisdictions; if the costs for Ireland are broadly comparable to all other jurisdictions in which Spinraza is being made available; the rationale for it not being made available here; and if he will make a statement on the matter. [11180/19]

Simon Harris (Wicklow, Fine Gael)
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Under the Health (Pricing and Supply of Medical Goods) Act 2013, the HSE has statutory responsibility for the pricing and reimbursement of medicines; therefore, the matter has been referred to the HSE for attention and direct reply to the Deputy.