Written answers

Tuesday, 14 February 2017

Photo of Gino KennyGino Kenny (Dublin Mid West, People Before Profit Alliance)
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441. To ask the Minister for Health the status of the plan to fund the establishment of a national service for narcolepsy in St. James's Hospital; if he will expedite this plan to avoid further delay; and if he will make a statement on the matter. [6993/17]

Photo of Simon HarrisSimon Harris (Wicklow, Fine Gael)
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Work is underway on the proposed Centre of Excellence for Narcolepsy based in St James's Hospital which will cater for all people diagnosed with narcolepsy, including those diagnosed with narcolepsy after receiving pandemic influenza vaccine. The HSE has indicated that a business case, including a funding requirement of €1.6 million, was submitted as part of the estimates process. In relation to allocation of resources by the HSE, I have asked the Executive to reply directly to the Deputy.


Anne Neville
Posted on 16 Feb 2017 8:08 pm (Report this comment)

We need the HSE Executive to meet with the Group Sound about the funding for this center children will be transferring from Temple Street with no where to go to be treated for Narcolepsy due to the Pandemrix Vaccine.
We are also Asking Minister Harris to meet with Sound Group.

Mairead Lawless
Posted on 16 Feb 2017 8:49 pm (Report this comment)

The answer to this question is very simple. The funding has not been approved and the development is not therefore proceeding contrary to Minister Harris suggestion. This was confirmed in writing today to two other TDs by the HSE.

SOUND representing over 80 families affected by the Pandemrix Vaccine is requesting an urgent meeting with Minister Harris. Where do our adolescents transitioning from the public service at Temple Street Hospital go now?? How can a not yet developed "Centre of Excellence" provide them with the medical care they require?

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