Written answers
Wednesday, 6 July 2016
Department of Health
Rare Diseases
Tom Neville (Limerick County, Fine Gael)
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224. To ask the Minister for Health his views on correspondence (details supplied) regarding an exomphalos day; and if he will make a statement on the matter. [19986/16]
Marcella Corcoran Kennedy (Offaly, Fine Gael)
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Exomphalos is considered to be a rare disease. There are approximately 8000 rare diseases and Rare Disease Day is celebrated across Europe at the end of February every year. This day also has the support of the European Union and the day promotes awareness of a range of rare diseases.
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