Written answers
Thursday, 26 September 2013
Department of Health
Rare Diseases Strategy Publication
Gerry Adams (Louth, Sinn Fein)
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26. To ask the Minister for Health when the national action plan on rare diseases will be published; if a Health Service Executive clinical director will be appointed to co-ordinate implementation of the plan; if a State registry and rare disease information office will be established; and if he will make a statement on the matter. [40031/13]
James Reilly (Dublin North, Fine Gael)
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Work on the drafting of a National Plan is well under way with publication of it earmarked for the end of the year.
As the particular queries raised by the Deputy are service matters, I have asked the Health Service Executive to respond directly to the Deputy.
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