Written answers

Tuesday, 27 November 2012

Photo of Brian WalshBrian Walsh (Galway West, Fine Gael)
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To ask the Minister for Health his plans for the establishment of multi disciplinary clinics for the treatment of Huntington’s Disease in line with best international practice; and if he will make a statement on the matter. [52773/12]

Photo of Kathleen LynchKathleen Lynch (Cork North Central, Labour)
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Huntington's Disease (HD) is a genetic, neurological disorder and is classified as a rare disease. The supports provided by the Health Service Executive (HSE) to people with HD involve a multidisciplinary team approach to the provision of health and personal supports. This incorporates assisted living services, including Personal Assistant Services, Aids and Appliances and hospital, primary care and community services. The HSE recognises the valuable contribution of the Huntington's Disease Association of Ireland (HDAI) and approved a grant of just over €68,000 for 2012, to support the work of the organisation. The HDAI is a member of the Neurological Alliance of Ireland and the Disability Federation of Ireland. Both umbrella organisations provide support to the HDAI and are supported by the State through funding from the HSE. I have referred the Deputy's query concerning the establishment of multidisciplinary clinics for the treatment of Huntington's Disease to the HSE for consideration and direct reply to the Deputy.

Photo of Charles FlanaganCharles Flanagan (Laois-Offaly, Fine Gael)
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To ask the Minister for Health if his attention has been drawn to the fact that persons in Laois/Offaly have a wait of at least two years to have a hearing test; the steps he will take in order to improve matters; and if he will make a statement on the matter. [52784/12]

Photo of Charles FlanaganCharles Flanagan (Laois-Offaly, Fine Gael)
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To ask the Minister for Health if his attention has been drawn to the fact that persons in Laois/Offaly have to wait for a minimum of two years in order to have a hearing aid fitted; if this timeframe is the same in other counties here; and if he will make a statement on the matter. [52785/12]

Photo of Alex WhiteAlex White (Dublin South, Labour)
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I propose to take Questions Nos. 682 and 683 together.

The HSE National Audiology Review Group Report, published in April 2011, made recommendations to address inconsistencies and shortcomings in the audiology services, including unacceptable waiting times. An additional €3.7 million was made available in 2011 to begin the implementation of the recommendations. Among the actions being taken are the following:

- An Audiology Clinical Care Programme has been put in place under the Clinical Strategy and Programmes Directorate;

- Newborn hearing screening programme now covers Cork, Waterford and Wexford, South Tipperary and Kilkenny hospitals. The roll-out to Dublin Mid Leinster and Dublin North East is scheduled by year end and to HSE West for 2013;

- A candidate has been selected for the post of National Clinical Lead and four Assistant Lead posts have been approved to provide the clinical governance required for the development of the service;

- A unified career structure is being developed;

- The HSE has sponsored 10 M.Sc. in Audiology students, who will be ready to enter the workforce in September 2013;

- Systems for the collation of activity data and patient management are being developed;

- A procurement exercise for the purchasing of hearing aids, hearing aid fitting systems and audiological assessment equipment has been completed; and

- The Bone Anchored Hearing Aid Programme has commenced in three sites and will be further rolled out in 2013.

It is expected that these new initiatives will have a positive impact on waiting lists and will provide improvements in audiology services throughout the country. The HSE is not in a position to provide accurate data regarding waiting lists at present. An exercise in validating all audiology waiting lists is underway and will be finalised in 2013.

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