Written answers
Wednesday, 11 January 2012
Department of Health
Departmental Reports
8:00 pm
Aengus Ó Snodaigh (Dublin South Central, Sinn Fein)
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Question 850: To ask the Minister for Health if the review on the question of retaining or destroying the Guthrie cards has been completed; if he will publish the review; and whether families affected were consulted as part of the review procedure. [41000/11]
James Reilly (Dublin North, Fine Gael)
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To comply with Data Protection Legislation, a number of changes are required to the Newborn Screening Card and the National Newborn Bloodspot Screening Programme. I requested that the HSE undertake a review of the governance policy regarding the retention and disposal of Newborn Screening Cards (NSCs). A draft report on the agreed governance structures undertaken by the National Newborn Screening Programme Governance Group has been prepared. I expect to receive its final report shortly.
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