Written answers

Wednesday, 10 February 2010

Department of Health and Children

Health Services

10:00 pm

Photo of Bernard DurkanBernard Durkan (Kildare North, Fine Gael)
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Question 188: To ask the Minister for Health and Children the action she will take to meet the requirements of cystic fibrosis sufferers with a view to bringing the quality of service here into line with that available in other jurisdictions; and if she will make a statement on the matter. [7277/10]

Photo of Mary HarneyMary Harney (Dublin Mid West, Independent)
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I have consistently emphasised the need to improve facilities and services to persons with cystic fibrosis. Following publication of the Pollock Report in 2005, the Health Service Executive established a Working Group to undertake a detailed review of cystic fibrosis services. The Group, which was multi-disciplinary in its composition and included representation from the Department of Health and Children, was asked to review the current configuration and delivery of services to persons with cystic fibrosis in Ireland. The report was published in October 2009. Many of its recommendations had already been implemented.

Some 50 additional staff including consultant, nursing and allied health professionals, have been appointed across the hospital system in recent years to enhance the level of services provided for persons with cystic fibrosis. The HSE was asked to place a particular focus on the development of services at the National Adult Tertiary Referral Centre at St. Vincent's Hospital. The hospital currently treats over 50% of the CF adult population. A number of capital projects have been completed at the hospital and have helped to improve facilities. These include a new ambulatory care centre, the refurbishment of St. Camillus Ward, and a new Emergency Department which includes single room accommodation.

The refurbishment of accommodation to provide eight single en-suite rooms for patients with cystic fibrosis was completed in August 2008 and the beds are now operational. This brings the total level of in-patient accommodation for the treatment of respiratory patients (including people with CF) at the hospital to 63 beds.

A new ward block to replace existing accommodation is being developed at the hospital. This facility will provide single room en-suite inpatient accommodation (100 rooms) and a dedicated day unit for people with CF, including 10 single day treatment rooms with en-suite sanitary facilities. Tenders for this development are currently under consideration. It is estimated that the construction, equipping and commissioning of this block will take approximately 18 months. It is intended that the development will become operational as early as possible in 2011. The new facility will include accommodation for cystic fibrosis patients with appropriate isolation facilities for the treatment of their condition. The HSE is now working with St. Vincent's to identify opportunities for patients who do not require tertiary level care to be treated close to home where adult services have been developed in the other specialist centres.

A number of other significant capital developments are being progressed for cystic fibrosis patients throughout the country, including in Beaumont Hospital. Capital funding has been provided for the development of outpatient facilities for patients with CF treated at Beaumont Hospital. The project is in two phases and the first phase (decanting) was completed at the end of 2009. The second phase is due for completion in the second quarter of 2010. HSE funding enabled the construction of a three storey building consisting of two floors each of 14 single rooms, and 8 bed HDU and two additional ICU rooms (within existing ICU). Services for patients with cystic fibrosis are also provided at Our Lady's Hospital, Crumlin, Children's University Hospital, Temple Street, Tallaght Hospital, Cork University Hospital, Waterford Regional Hospital, Mid Western Regional Hospital, Limerick, University College Hospital Galway and Our Lady of Lourdes Hospital in Drogheda.

The Cystic Fibrosis Registry of Ireland (CFRI) receives support funding from the HSE. Ireland is the only European country to commit public funding to a CF registry. The CFRI is now in a position to produce relevant data on 90% of people with CF in Ireland. The average enrolment of people with CF in other country registries is approximately 80%. The Newborn Screening for Cystic Fibrosis Steering Group was established in June 2009 under the Chairmanship of Professor Gerry Loftus, Professor of Paediatrics, Galway. This group has a broad membership from key stakeholders and experts in the field of cystic fibrosis. The screening programme will commence implementation in 2010 provided all the necessary general and specific screening programme governance arrangements are in place.

The Cystic Fibrosis Association of Ireland has made representations to the HSE in respect of people with Cystic Fibrosis living in Donegal for whom attendance at the CF centre in Belfast might be more convenient. The HSE is pursuing this through Co-operation and Working Together (CAWT). I am conscious that further improvements are required, including the need to develop community outreach services to facilitate the treatment of patients outside of a hospital setting where appropriate. Taken together, the planned developments represent a tangible improvement in the quality of services for people with cystic fibrosis.

Photo of Bernard DurkanBernard Durkan (Kildare North, Fine Gael)
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Question 189: To ask the Minister for Health and Children the number of instances in respect of which home help hours were reduced in the past 12 months throughout the country on a county basis; and if she will make a statement on the matter. [7278/10]

Photo of Áine BradyÁine Brady (Kildare North, Fianna Fail)
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As this is a service matter it has been referred to the Health Service Executive for direct reply.

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