Written answers

Tuesday, 10 November 2009

Department of Health and Children

Duchenne Muscular Dystrophy

9:00 pm

Photo of Joe McHughJoe McHugh (Donegal North East, Fine Gael)
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Question 234: To ask the Minister for Health and Children further to a statement by her Minister of State in Dáil Éireann on 4 November 2001 that he will meet with a group (details supplied) in a week or two, if he will arrange a meeting that will not coincide with the Treating MD/NIH neuromuscular conference that is scheduled to take place on 17 to 19 November 2009; if he will make contact with an organisation in Newcastle, England; and his plans to secure an clinician based here to lead clinical trials. [40485/09]

Photo of John MoloneyJohn Moloney (Laois-Offaly, Fianna Fail)
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I have given an undertaking to meet with Duchenne Ireland as soon as possible. I will ensure that the meeting does not coincide with the conference scheduled for the 17th to the 19th November.

As I outlined in my reply to Oral PQ number 84 on 4th November, the issues raised by Duchenne Ireland are under active deliberation and receiving detailed consideration at the highest levels in the Department. I also pointed out that while the Department is working through the various issues raised by Duchenne Ireland, it may not be possible to come to a full resolution of all the issues that are of concern to them.

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