Written answers
Tuesday, 22 September 2009
Department of Health and Children
Muscular Dystrophy
9:00 pm
Joe McHugh (Donegal North East, Fine Gael)
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Question 155: To ask the Minister for Health and Children if she will meet with representatives of an organisation (details supplied) further to a commitment made by her in the course of a Dáil debate on 21 May 2009; and if she will make a statement on the matter. [32160/09]
John Moloney (Laois-Offaly, Fianna Fail)
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Following the Dáil Debate on 21 May 2009, I met with Duchenne Ireland on 16 June 2009. The issues discussed at that meeting included Research, Clinical Trials and Standards of Care for the treatment of boys with duchenne muscular dystrophy. The issues raised by Duchenne Ireland are under active deliberation and receiving detailed consideration within the Department.
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