Paul Kehoe (Wexford, Fine Gael)
Link to this: Individually | In context

Question 197: To ask the Minister for Health and Children the number of people who died that were diagnosed with cystic fibrosis in each county in the years 2002 to 2007 and to date in 2008; the average age and gender in each case; and if she will make a statement on the matter. [9489/08]

Bernard Durkan (Kildare North, Fine Gael)
Link to this: Individually | In context

Question 235: To ask the Minister for Health and Children the number of children on average born here with cystic fibrosis in each of the past 10 years; the number in each EU country in the same period; the extent of research and support services made available here and in other EU Member States with a view to improving the quality of life and life expectancy; and if she will make a statement on the matter. [9765/08]

Mary Harney (Dublin Mid West, Progressive Democrats)
Link to this: Individually | In context

I propose to take Questions Nos. 197 and 235 together.

The information sought by the Deputies is not routinely collected by my Department.

An independent registry for cystic fibrosis, which is funded by the Health Service Executive, has been established. As yet, the data is not available to fully inform analysis relating to persons with cystic fibrosis, including median survival, in this country. When it is available, the data from the Registry will allow for benchmarking against comparable countries around the world to measure the performance of our healthcare system.

My Department has asked the HSE to arrange to have replies issued to the Deputies on the specific issues raised.