Dáil debates

Thursday, 19 June 2025

Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation

 

6:15 am

Photo of Simon HarrisSimon Harris (Wicklow, Fine Gael)

I thank Deputy Crowe for his very constructive suggestion. Tomorrow, we will have a meeting of the North-South Ministerial Council, which will be an opportunity for colleagues across the island of Ireland to get together. I will raise the issue of DMD on the meeting's margins. If it is possible for professionals throughout the island to work together in the interests of patients with a rare disease, I am sure that is something everyone would like to see happen. We need to do more regarding rare diseases and quick and timely access to medications. The Minister for Health is very committed to this. There will be a new strategy in respect of rare diseases shortly also. The HSE has launched an application tracker to increase transparency in the medicines assessment process. I will look into this issue and revert to the Deputy.

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