Dáil debates

Thursday, 19 June 2025

Ceisteanna ar Pholasaí nó ar Reachtaíocht - Questions on Policy or Legislation

 

6:15 am

Photo of Seán CroweSeán Crowe (Dublin South West, Sinn Fein)

I wish to ask about Duchenne muscular dystrophy. We recently had young people in the AV room who talked about the challenges they faced. It is a wasting disease. There is a drug but it is not available here yet. It is available in the North. Would the Government look at early access as a shared island? The problem in the North is that it does not have the money to administer the scheme. The problem here is we do not have access to the drug. It seems logical to move ahead on that. I am aware of the Tánaiste's work as regards nurses in the past. Would he be open to looking at this as a possibility for the children on the island of Ireland?

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