Stephen Donnelly (Wicklow, Fianna Fail) | Oireachtas source

There is a drug that has been approved called Spinraza. I met the parents of a beautiful young boy earlier this week at the Laura Lynn Foundation who told me the drug their son is taking is having a real impact, which is very encouraging. The new drug the Deputy refers to has been raised with me and the National Centre for Pharmacoeconomics will be taking a look at it. I fully appreciate that for baby Kate and her parents, time is of the essence.

See this speech in context