Dáil debates

Thursday, 30 September 2021

Cork University Maternity Hospital: Statements

 

5:50 pm

Photo of Holly CairnsHolly Cairns (Cork South West, Social Democrats) | Oireachtas source

I do not get much face-to-face time with the Minister so I wanted to raise quickly the issue of baby Kate from Dunmanway. I want to ask the Minister and the HSE to do all they can to approve Zolgensma, a drug used to treat spinal muscular atrophy. This has been called a miracle drug that could save the lives of very small children like Kate who have a rare muscular condition. Kate Mynard is 17 months old and this drug is generally only administered to children under the age of two, based on their weight. Kate’s parents are pleading with the HSE to strike a deal with the manufacturers of this drug in time for Kate to be able to benefit. I ask the Minister to do all he can to make this happen.

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