Dáil debates

Tuesday, 15 October 2019

An tOrd Gnó - Order of Business

 

3:00 pm

Photo of John CurranJohn Curran (Dublin Mid West, Fianna Fail) | Oireachtas source

I support my colleague on the issue of Spinraza. This matter was raised in the House on previous occasions. A commitment was given on 11 June, but four months on, patients still do not have access to this drug. I am concerned that the affected children are the victims of cuts within the Department of Health. Funding should have been made available in June. The wait has been incredibly long and frustrating. Most of the patients expected to be in treatment by July, not October or November.

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