Gino Kenny (Dublin Mid West, People Before Profit Alliance) | Oireachtas source

Four months ago Spinraza was approved for 25 children with spinal muscular atrophy, SMA, in this State following a very protracted campaign by parents and a number of Deputies in this House. However, the children have not yet been given access to Spinraza. Patients and their parents have contacted Deputies in this House. They are very frustrated with the whole process. Spinraza has been approved for these 25 children, but with winter approaching, they still do not have access to it. When will they be given access to Spinraza?

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