Dáil debates

Thursday, 13 December 2018

Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation

 

12:40 pm

Photo of Simon CoveneySimon Coveney (Cork South Central, Fine Gael) | Oireachtas source

As the Deputy knows, a recommendation on the use of Spinraza must be made by the rare diseases technology review committee. My understanding is that the committee is unlikely to make a final recommendation on Spinraza until January. While I know that this is not what the families want to hear, I am just giving the Deputy the most accurate information available to me.

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