Dáil debates
Thursday, 13 December 2018
Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation
12:40 pm
Simon Coveney (Cork South Central, Fine Gael) | Oireachtas source
As the Deputy knows, a recommendation on the use of Spinraza must be made by the rare diseases technology review committee. My understanding is that the committee is unlikely to make a final recommendation on Spinraza until January. While I know that this is not what the families want to hear, I am just giving the Deputy the most accurate information available to me.
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