Dáil debates
Thursday, 13 December 2018
Ceisteanna ar Reachtaíocht a Gealladh - Questions on Promised Legislation
12:40 pm
Dara Calleary (Mayo, Fianna Fail) | Oireachtas source
On 20 September last, I raised the issue of Spinraza with the Tánaiste. It is a miracle drug that will give a future to 25 children and their families. Almost three months later, we are no further on in giving assurances to those families about the availability of Spinraza. I ask the Tánaiste, as deputy head of Government, to intervene and inject some urgency into this process. I acknowledge the work of my colleagues, Deputies Lisa Chambers and Curran, in consistently raising this issue. I ask the Tánaiste to inject some urgency into this process in order to give certainty and hope to the affected families this Christmas.
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