Mr. John Sherwin:

Data is as important for disabled and deaf people as it is for other people in society. We can see how our data is being mined, sold and used for commercial purposes every day through apps, websites, browsers and data collection. We have an additional concern that data will be used against us, not only in terms of commerciality but also in terms of control and decision making. Decision making for disabled people is a very complex subject. Data use, in terms of decision making, can be misimplemented and that one example that we have included shows how that is happening in 50% of settings in England already. We have huge concerns about that. The guardrails need to be there in terms of what our rights are vis-à-vis data, its use in AI and how it can be removed and changed.

That is a huge concern.