Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Dr. Lesley Tilson:

We have a patient organisation submission process and there is a template. The organisations submit their representations via the NCPE and they are presented to the drugs group. There is a public representative on the drugs group, and they consider the wider range of criteria in addition to the NCPE evidence. Some of this refers to beyond the NCPE.