Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Professor Michael Barry:

I suppose you have to look at where this all comes from. We are talking about development over 25 to 27 years. It is grounded mainly in health economics and clinical medicine. Should there be an ethical framework around it? Yes. That is in the definition of “health technology assessment”-----