Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Photo of Pádraig RicePádraig Rice (Cork South-Central, Social Democrats)
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The stakeholders who have been in touch with us are calling for a clinical reassessment framework allowing adults with SMA to access therapy based on specialist clinical assessment and not chronological age. What is Professor Barry's view of that kind of proposal? From whom would direction be needed to act on that?