Oireachtas Joint and Select Committees
Wednesday, 15 October 2025
Joint Oireachtas Committee on Health
Treatment of Rare Diseases: Discussion
2:00 am
Pádraig Rice (Cork South-Central, Social Democrats)
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The stakeholders who have been in touch with us are calling for a clinical reassessment framework allowing adults with SMA to access therapy based on specialist clinical assessment and not chronological age. What is Professor Barry's view of that kind of proposal? From whom would direction be needed to act on that?