Oireachtas Joint and Select Committees

Wednesday, 15 October 2025

Joint Oireachtas Committee on Health

Treatment of Rare Diseases: Discussion

2:00 am

Professor Michael Barry:

We have not been asked to look at it recently. It is something that could be looked at. As I said, however, that was the position taken with the information available to us at the time. The Cathaoirleach highlighted a number of people who were not on treatment. Maybe that should be revisited, but certainly at the time it was based on clinical data.