Oireachtas Joint and Select Committees
Wednesday, 15 October 2025
Joint Oireachtas Committee on Health
Treatment of Rare Diseases: Discussion
2:00 am
Professor Michael Barry:
We have not been asked to look at it recently. It is something that could be looked at. As I said, however, that was the position taken with the information available to us at the time. The Cathaoirleach highlighted a number of people who were not on treatment. Maybe that should be revisited, but certainly at the time it was based on clinical data.