Oireachtas Joint and Select Committees

Wednesday, 16 October 2024

Joint Oireachtas Committee on Disability Matters

Children with Disabilities - UNCRPD Article 7: Discussion

5:30 pm

Ms Paula Soraghan:

My role is as a community development worker, so I work on the VOICE project, which is an acronym for virtual online inclusive communities for empowerment, a community development project in the south east funded by the Department of Rural and Community Development. Before I started working with ILMI in January 2022, I was a member of that project and the youth collective, so I know how valuable that space is. Starting in 2023, I co-facilitated it, and I am now the facilitator of the space. It is important because it is a space where disabled people, throughout the island of Ireland, on a cross-impairment basis, that is, regardless of the person's impairment, between the ages of 16 and 30, can engage with like-minded people about issues that are affecting them as young disabled persons. It is a social space but it is also a space to address policy issues. We have worked with, for example, Hub na nÓg on the participation of disabled children and young people. We have also engaged with the National Disability Authority on guidance counselling, the importance of that in schools and how to make it inclusive to engage with young disabled people. We have also worked with many stakeholders on policy issues that affect our lives because we had found there was an absence of young disabled people within DPOs on a cross-impairment basis engaging in policy discussions within the youth collective. The youth collective was created to bridge that gap, and that is our role. It is to work as a collective and build up young disabled people's capacity and confidence, to empower them to be agents for change, and to have their voices heard and know they do have contributions to make on issues that affect them and that they do have value. That is my role in the youth collective.

On how we in ILMI would like to change things from how they currently are to what real inclusion needs to look like, it is about continued relationship-building, collaboration and co-creation with DPOs such as ILMI and Departments. As I said, there needs to be a commitment from the Government to resourcing and funding DPOs on a multi-annual basis in order that we can continue to carry out our work. We need to continue to resource the youth collective by employing a dedicated worker who can work within and nurture that space and build on the work that has been done thus far. Within policymaking, it is about moving from consultation to collaboration and co-creation, and a lot of work has been done on that. We need to build on that and build up young disabled people's capacity to take on representative roles within local structures in order that they will know they can be agents for change within their local communities, but not from a personal point of view where they share their personal stories because structural change will not take place with that approach. Rather, it has to be a collective approach, with collective representation, whereby they will be a representative of ILMI within these spaces.

I apologise but the Deputy might remind me what the third question was.