Dr. Siobh?n McHale:

It is similar to working with people in very challenging situations who are suicidal and can only see that they either live as they are or they end their life. What we suggest is that there is another way to approach and address this. The lack of information we have about people's experience at the end of life is significant. We say, similar to our colleagues in the NSRF who have particular expertise in research and the quality of research in these areas, and that is an area-----