Ms Jane Johnstone:

I absolutely agree. Those are exactly the things that can cause stress to people who are already under immeasurable pressure. People need knowledge about what is happening and vital things such as how long they might be waiting and what happens while they are waiting. Those are the biggest concerns to family carers. Those carers want their loved ones to make decisions and to live a full and equal life. That is what we have always been about. It is scary that we do not know what happens while we are waiting.