Oireachtas Joint and Select Committees

Tuesday, 20 September 2022

Joint Oireachtas Committee on Autism

Autism Policy: Discussion (Resumed)

Ms Margaret Lowndes:

I wish to come back to the point about parents bringing up the data and campaigns. It is left to parents to put campaigns together. They can find this data. I find it amazing that the majority, including ourselves, have found this data. One of the reasons is that the NCSE does not keep data. The committee should know it is something that needs to be brought in. We need a centre and a database system. The NCSE needs to work on how it keeps its data. As far as we are concerned, when we started out, we were told there was very little in our area, which was true. It did not have the number of children or anything.