Ms Miriam Jennings:

It is not fair. It is very sad. It is a reality. It is a very sad consequence, and an unintended consequence, of parenting a child with a lot of needs. We ask for very little and very little can make the difference there. Consider a little child getting her summer holidays at the end of June but her brother, who might be five or six years older and be a big lad at 6 ft with a lot of medications going in and a lot of issues going on, is also getting his holidays at the end of June. There are no days out. There might not even be a summer camp for the little sister or the little brother because mum cannot physically get everyone in the car to bring them there. It is very sad for that child. It is very difficult and stark.