Oireachtas Joint and Select Committees

Tuesday, 15 February 2022

Joint Committee On Children, Equality, Disability, Integration And Youth

General Scheme of the Assisted Decision-Making (Capacity) (Amendment) Bill 2021: Discussion (Resumed)

Mr. Joe McGrath:

Talking about privacy, sometimes there are files that social workers and other staff members have written about persons with disabilities, which say things that are not true. We disagree with this. We do not want other people to be able to read this information. If you would not share information about a person who is not disabled, you should not share information about a disabled person. Why discriminate between able-bodied and disabled people? We are still the same people but if disabled persons do not consent to have their information shared, it should not be shared unless a judge orders that it be shared. Our privacy is very important to us. If, at some stage something happened to one of the members and he or she was in the same position as most of us who spoke today, that member would not want his or her private information shared with people he or she did not even trust.