Oireachtas Joint and Select Committees

Thursday, 18 November 2021

Joint Oireachtas Committee on Disability Matters

Aligning Disability Services with the UN Convention on the Rights of Persons with Disabilities: Discussion (Resumed)

Ms Anna-Karin Ulpe:

I thank the Senator. MEAI would be delighted to hear that; the committee is very good. For anybody interested in the newest research on ME and also on long Covid and the relationship between long Covid and ME, there is a fantastic resource called Open Medicine Foundation. The website is omf.ngo, which stands for non-governmental organisation. It is a global research leader with six research centres across the globe. It is US based but it is also in Canada, Australia and Sweden. It is trying to uncover this newest problem in the world now. It is independent so it is relying only on private funding. No governments are supporting it. It has two Nobel laureates among its researchers. There is loads of information on its website if anybody is interested in that.