Oireachtas Joint and Select Committees

Thursday, 18 November 2021

Joint Oireachtas Committee on Disability Matters

Aligning Disability Services with the UN Convention on the Rights of Persons with Disabilities: Discussion (Resumed)

Ms Lorna McGreehan:

In terms of my lupus, all of my services are in Dublin. When you have lupus, there are so many things that can go wrong. It can affect the heart, lungs, liver, kidneys, central nervous system and the brain. I have decided to keep everything in one hospital because that is the only way that I can feel safe. In regard to my eyes, because I was on medication for a long time, the retina was burned out of the back of my eye. It is very rare that that happens. One has more chance of winning the lottery. It is macular, but because it is drug induced nobody knows for how long more I will have the degree of sight that I have. It is my personal decision to keep everything in one place, with the HSE and my doctors. In recent times, things have been changed up. One of my consultants retired and so things will be a little bit more difficult until I find my feet.

I am in the lucky position that I can interview my doctors. I will not accept bad manners; I am fed up with that. We have to be strong. Without a specific doctor to go to, I do not know where I would be. On discrimination with regard to public transport, rural Ireland does not have a public transport system to enable people to get from A to B. One is always relying on taxis, strangers and so on for transport. There are things that can be made better. Hopefully, we can do that.