Oireachtas Joint and Select Committees
Wednesday, 26 May 2021
Joint Oireachtas Committee on Health
Rare Diseases: Discussion
Neasa Hourigan (Dublin Central, Green Party)
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I want to stick to the area of testing for a moment. It is great that Ms Daly finally got her test, but I suspect that once she did, her experience was very different from that of most people. I want to unpack a little the experience of families dealing with this issue. What is the average experience in Ireland at the moment? My understanding is that when a medical professional suspects a particular diagnosis, he or she tests for it. Is that correct? Maybe that is a question for Dr. Lynch.