Oireachtas Joint and Select Committees

Wednesday, 26 May 2021

Joint Oireachtas Committee on Health

Rare Diseases: Discussion

Dr. Sally Ann Lynch:

I can answer this. With regard to private services, there is somebody who works in the public sector who does cancer genetics privately in the Hermitage Medical Clinic. The person was in the Blackrock Clinic but is not there any more. I am not too sure whether the person is in the Mater Private Hospital. We believe somebody will start doing clinical genetics privately in Blackrock in June. Apart from this, if people want clinical genetics for rare diseases, it is in the public domain. The three of us working in it do not do private practice. I do not do private practice and neither do my two colleagues. There really is nowhere people can go. They can try the treatment abroad scheme or cross-border care but it is very difficult for people who have disabled children to try to travel, never mind with Covid. We are more than happy for them to travel because the waiting lists are unacceptable. There is not huge provision. Because each case is so complex we cannot turn over patients quickly. They need the time. When the private provider starts up in Blackrock, I do not know how much he will be able to mop up.