Oireachtas Joint and Select Committees

Wednesday, 26 May 2021

Joint Oireachtas Committee on Health

Rare Diseases: Discussion

Dr. Sally Ann Lynch:

I have published a paper on inequity across Europe. Ireland does poorly in comparison with other EU countries. We are members of the European Society of Human Genetics, ESHG. Ms Daly can discuss this from the Eurordis point of view. They will say that it is up to Ireland and the Department of Health to provide for its citizens. We cannot, therefore, expect Europe to mop up what is our responsibility.