Oireachtas Joint and Select Committees
Wednesday, 26 May 2021
Joint Oireachtas Committee on Health
Rare Diseases: Discussion
Dr. Sally Ann Lynch:
I have published a paper on inequity across Europe. Ireland does poorly in comparison with other EU countries. We are members of the European Society of Human Genetics, ESHG. Ms Daly can discuss this from the Eurordis point of view. They will say that it is up to Ireland and the Department of Health to provide for its citizens. We cannot, therefore, expect Europe to mop up what is our responsibility.